<<< back to Adrenoleukodystrophy main page
I'm from: United States, WA (edit) and
I find this video ...
More Adrenoleukodystrophy videos
Faces of Rare Disease Adrenoleukodystrophy YouTube
ALD: Zain's Story
This is the story of a 10 year old boy named Zain and his 6 year old brother Aden. Zain was diagnosed with the cerebral form of X-linked Adrenoleukodystrophy...
Case Study X-Linked Adrenoleukodystrophy
Case Study for BI102B by Olivia.
Marc Elliott - Adrenoleukodystrophy / Fermanagh TV
The parents of Marc Elliott, the Enniskillen four-year-old diagnosed with adrenoleukodystrophy (ALD) a rare and incurable genetic disease, are planning to ta...
"...X-linked Adrenoleukodystrophy..." by Dr. Florian Eichler
May 15th, 2013 12th ANNUAL WILLIAM KRIVIT LECTURESHIP "A Hundred Years of X-linked Adrenoleukodystrophy: Where Do We Go From Here?" Florian Eichler, MD Assis...
Nathalie Cartier Comments on Gene Therapy Success for Adrenoleukodystrophy (ALD)
In this video, Nathalie Cartier, MD of INSERM in France, and the lead author of the gene therapy paper published in the Journal Science, reveals their succes...
Adrenoleukodystrophy ¦ Treatment and Symptoms
http://www.mainmd.com/adrenoleukodystrophy/ ◅ Adrenoleukodystrophy treatment — Finding the right information about Adrenoleukodystrophy treatment & symptoms,...
Aarkstore Present Adrenoleukodystrophy-Adrenomyeloneuropathy- Schilder-Addison.
Adrenoleukodystrophy / ALD / X-ALD
A Quick summary of a rare gene mutation.
Project for IEC 522.
A disease that causes death after the mother(as a carrier) passes the trait that doesn't let the brain work very well. All this because of the lack of myelin...
Patrick Aubourg Comments on Gene Therapy Success for Adrenoleukodystrophy (ALD)
In this video, Patrick Aubourg, MD of INSERM in France, and the co-author of the gene therapy paper published in the Journal Science, reveals their successfu...
What is ALD ?
A&P project over ALD.-- Created using PowToon -- Free sign up at http://www.powtoon.com/ . Make your own animated videos and animated presentations for free....
Adrenoleukodystrophy —— Please watch it in fullscreen.
It is only a school project, don't blame anyone for it.
ALD Foundation video
Adrenoleukodystrophy or ALD is fatal genetic disorder. David Cry, the head of the ALD Foundation has been affected by ALD personally. His Adopted son Logan w...
ALD Life Charity Appeal
ALD Life is a registered charity supporting those affected by Adrenoleukodystrophy (ALD) - a rare genetic disorder that renders normal, healthy young boys in...
Jimmy was a healthy boy until he started to loose some of his abilities when he was 8 years old. He was diagnosed with ALD.
Lorenzo had ALD, a different Leukodystrophy but almost identical to Krabbe.
Gift from Sister and Rapid Response Time Save Teen from Rare Brain Disease
Connor Tillapaugh is one of Golisano Children's Hospital's 2010 Miracle Kids. The way Connor's big toe responded in a routine test showed Dr. Jonathan Mink a...
Jimmy Schmitt PSA
Jimmy Schmitt Adrenoleukodystrophy (ALD)
Justin, (Part one)
Telethon viewers met Justin and his mom last year, as they awaited test results on a bone marrow transplant aimed at saving this young man from a deadly inhe...
A Mother's Quest: BAHBAD.Org
OC mother Gina Cousineau and her daughter Mary, share the journey they were taken on as they fought for son/brother Evan's life when he was diagnosed on May ...
Zachary's 8th Birthday
This was Zachary's last birthday. He passed away on April 22, 2002 from complications of Adrenoleukodystrophy.
Kathleen M. Zackowski, Ph.D., O.T.R. presentation at Rare Disease Workshop 3
Dr. Kathleen Zackowski's presentation at Rare Disease Workshop 3: Use of Surrogate Endpoints in Rare Disease Treatment Development, November 8-9, 2011 "X-lin...
Leading the Way Through Research - Long Version
"That's the whole purpose of this idea [that began with the Kennedy Fellows] of training individuals to work in the field of developmental disabilities, and ...
Augusto Odone Died Age 80
Augusto Odone, who rejected medical opinion and created an oil to save the life of his son Lorenzo has died. The former World Bank economist died in Italy ag...
Learn Zumba in Cambridge
Zumba instructor, Katie Granger, asked people in Cambridge to back a fundraising battle on behalf of a young boy suffering from a rare brain disease called a...
ON THIS RAINY DAY,THE LEE & STEVIE STORY
This is the story of Lee Giordano who has a 13 year old son with Adrenoleukodystrophy or A.L.D for short. I met them both today while coming home from work. ...
Chris Callen Talks about the ALD Disease
ALD, also called Siemerling-Creutzfeldt Disease or Schilder's disease) is a rare, inherited disorder that leads to progressive brain damage, failure of the ...
<<< back to Adrenoleukodystrophy main page